An update on the continuous MS journey..

Welp, my Urologist appointment went well. The Dr seems so nice and funny. He thought he was meeting a dude name Clark because they forgot a comma between my first and last name. He went to shake my Lovey’s hand and he’s like nope this appointment is for her but nice to meet you! We talked about possible medications and I asked for an natural options. He said there is a natural remedy (something to do with a needle inserted into a nerve at your ankle that stimulates the sacral nerves in your low back to help improve or restore bladder functions) for after he gets the test results back on next steps. He really likes my neurologist and said I’ve got one of the best as he only specializes in MS. He asked a bunch of questions – how’s the flow and stream? Do you feel you empty your bladder? Now every time I pee I sit and evaluate it all! Whew, what fun this is.. Speaking of fun, I have 2 awesome sounding procedures scheduled in July. 😲

Cystoscopy – small camera similar to a catheter that is inserted through the urethra and into the bladder to inspect for any abnormalities. Things to expect after – blood in urine, burning with urination and urgent to urinate – Uhm that’s why I went so this sounds like a joy! 🙄

Urodynamic Testing (UDS) – testing the function for the bladder. Need to come with a FULL bladder (drink about 3 – 12 ounce glasses) as the first test is to test the flow. After that test bladder is emptied. The next test sounds so much more fun than the camera in my whoooha! Small catheters and sensors are used for the filling of the bladder phase – Cough and valsalva (What?! is this?) to detect any urinary leakage, bladder spasms and pressures. Once the bladder is full again and strong urge to go – empty bladder while the machine is recording urine flow, pressure of bladder and the urge. After that all the equipment used is removed. My worst fear is pissing all over the place or on the tech! Gosh, please don’t let the anxiety poops come on then too! 😬

MRI appointment was okay – it’s always fun trying to stay completely still with a jackhammer going off near my head for 45 minutes.

They pretty much lock you into a what I call the Hannibal Lecter mask, give you a call button, an IV for contrast in one arm then roll you into the machine. First test are just to get a start image. Then you lay there for several other longer tests (some are 4-11 minutes, while counting or focusing on your happy place listening to the beep, beeps and sounds of hammers. 🤕 🔨

At one point I felt my left hand go to sleep and kept thinking I hope I don’t need to squeeze this call button due to having to pee! The tech said I did well and was so super still. I said of course I was I didn’t want to have to repeat any of the tests. My neurologist Dr. should have results in about 3-5 days to see if I have any new lesions on my Brian or C spine.

To top this all off I not only have to have a camera, a catheter in my whoooha with all these tests; I’m due for my annual health and wellness appointment with my gynecologist office – my favorite nurse practitioner just moved back to Tennessee so I have a new person who is a Certified Nurse Midwife that I’ll be seeing. Talk about putting it ALL out there for complete strangers all in a 3 week timeframe. 😑

Note to self: Don’t worry about work, you have time off for a reason so you can schedule appointments on different days! 🤗

I’m hoping all these urologist tests provide a good look at my future plans for not running like a madwoman to the potty every hour sometimes twice an hour. 💖

2 thoughts on “An update on the continuous MS journey..

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