Biofeedback update – Session 9!

I went in for my 9th appointment and the original lady nurse practitioner that I have had most times was assisting in surgery so I had a new guy that is also a nurse practitioner.

He poked my left leg and tried to stimulate the nerve, he struck out. So he went for the right leg, again he struck out. He had to have his counterpart come in and said “I’ve never had to do that!” The other sweet lady nurse practitioner came in and found the nerve right away. I felt bad for the guy but it happens!

So far I’m pleasantly surprised that I’ve seen improvements. Of course I have days that I still go every hour a few hours in a row but it’s not EVERY hour! I think it depends on how much liquid I have in the mornings but I still need to hydrate!

They both said this is the time I should see the biggest improvement and I’m stoked but mindful I may have a bladder flare up but still Yays!!

My Step-brother was a Mo-Fo but Cancer is worse.

It has been 2 weeks since we found out that my step-brother passed away from liver cancer, more likely Cirrhosis of the liver.

In reading the comments online from his peers, friends, some family – he was an angel of man, a funny guy, a great partner (he was a sheriff), a gentleman, a kind and loving soul.

He was a drinker and not the nicest person all the time. He was a real dick most of my memories of him with a few times of being a nice guy.

I haven’t talked to or seen my step-brother in about 13 years. My daddy hasn’t talked to him in over a year.

It was a turbulent relationship between us all, Daddy, my mom, step-siblings and their mother, really throughout the years with some years being better than others.

Standing in my kitchen watching my sweet daddy cry at my dinner table just broke my heart. I’m sure his emotions were all over the place. Stunned, grief, guilt, disbelief and finally acceptance.

Why didn’t my step-brother’s mother call to tell my daddy his one and only son passed away?

When we found out he had been sick and in the care of his biological sister, my daddy’s daughter, for over 2 months; why didn’t he call before he passed away? And why didn’t she call to tell him?

As more and more details emerged we found out that my step-brother didn’t want anyone from his father’s side of the family at his funeral. We have no idea if this is true as we know his mother is a manipulative creature.

My daddy and mom say they made peace in their hearts and minds with my step-brother. I truly hope my step-bother did too when he met his maker, whatever this maker may look like, him/her/a panda, now he has to listen.

I don’t care how much of an ass you are/were nobody deserves to have suffer or lose their loved one to that beast cancer.

May we all be at peace and meet again in the light of love.

It still breaks my heart for my parents though. It’s just not something I can fathom as I get older. People suck but most the time it’s their own issues not the people they are rude/mean too. We’re all just fighting our own internal battles and trying to survive life. Be kinder to all. πŸ’™

Biofeedback update & Speciality pharmacy issues…

I completed my 6th biofeedback appointment and still am trying to determine if I see any changes in my bladder function. πŸ’¦

I actually have a running list of times I have gone potty the last two days. πŸ˜‚

It seems I still go every hour but I’ve gone 2 hours without having to go a few times! πŸ‘πŸΌ

I’m hoping to see some changes soon especially before our vacation planned next month. 🀞🏻

Now on to my issues with CVS.. This the the 3rd of 4th time I’ve had an issue with them getting my specialty medication to me. πŸ™„

I placed my order online LAST Friday to be shipped and here on Tuesday as I would be out of medication for my evening dose. I tracked it, it said scheduled for 9/10. Welp it was about 5:30pm and still no updates. It showed that the package was incorrectly sorted which may cause a delay and would not be here until 9/12. πŸ€” Uhm no, now I’m out of medication and had to call and speak with an escalations manager. This always frustrates me as they are so nice and all I wanna do is yell at the UPS person that they have on the line “do you not understand the urgency?!” as they are never helpful. 😀

The manager had to cancel the other order as the package was still in CA and sent out a new one. I just don’t understand why CVS does not send items through UPS overnight or why they do not just send Golden State Overnight like how my account is listed to do so since UPS has messed up in the past.

I’ve tracked the package and at least it’s in my state! 😊

I know it’s only a day without and my insurance pays for the entire amount minus my little Co-pay. What if it was a medication I needed to save my life? I can’t imagine how people would feel if they didn’t have their life saving medications. And how do people that can’t pay for their medication on occasion have to choose between groceries or medication do this daily? πŸ˜”

I am lucky to live where I do live and have the medical care that I do have. πŸ’–

MS after 8 years.

I first started noticing strange symptoms in May of 2011…

I was walking up stairs at work and tripped, I chalked it up to not lifting my foot high enough.

I was then walking along and tripped on a flat surface, I chalked it up to flimsy no support slip on shoes.

I dropped a plastic cup I was holding in my left hand, I chalked it up having an injury in that wrist from years ago and it was just weak.

I had numbness and tingles in my legs, I chalked it up to maybe I pinched a nerve.

I figured I should go see my general practitioner and have her check all the items I had been experiencing. She said she didn’t know for sure but said it could be MS and was referring me to the Mayo Clinic for tests.

I had no idea what Multiple Sclerosis (MS) was and some days I still don’t understand it. The Mayo Clinic definition is:

“Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system).

In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves.”

https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/syc-20350269

That timeframe was such a blur. I had more symptoms that occurred, the numbness and tingling moved up to the core of my body and arms. I had and still have some balance issues. I know I did bloodwork, was referred to a neurologist and had an MRI done.

I was officially diagnosed with Multiple Sclerosis on August 31, 2011.

I still have times where I have numbness and tingling in my left leg and sometimes hands. My balance issues are still there when I’m tired which is often, I’ll start to lose my balance or walk into a wall.

I have bladder issues and have been doing biofeedback – Percutaneous tibial nerve stimulation (PTNS). I haven’t seen any changes as of yet but the nurse did say it could take up to 6 sessions before seeing improvements. I’m hoping that I will see some soon so I don’t have to pee every hour.

I’m hopeful that I will see some changes soon as we have a big trip planned in October to visit New York, Paris, London and family in North Carolina.

August always felt like a bummer month with things happening but someone told me recently August is enlightening. πŸ’–

Mammogram and ultrasound update…

I went in to have my annual wellness exam last month. During the breast exam, she found a lump in my right breast close to the center of my chest. πŸ₯Ί

I was already due for a mammogram this year but this was a bilateral diagnostic exam. The pancake maker was uncomfortable for sure. πŸ₯ž 😣

I then had an ultrasound to check for any abnormalities. I had to wait for a Dr. to come in to do another ultrasound and speak to me about the results. ⏰

She said she didn’t see anything on the mammogram or the ultrasound. All is healthy just need to go back next year. 😌

Again, please do your own exams often and get checked once a year to make sure you’re in good health. πŸ’–

MS journey continues – Urodynamics Study (UDS) test results.

Bladder is all normal and healthy in regards to age and anatomy.

During the filling of the bladder; I had spasms in my bladder, tricking my body into thinking I had to go hence the frequency.

I had a spasm at 120 ml another at 150 ml. Once the amount was at 225 ml, the urgency increased and I needed to really go potty.

After I emptied my bladder, I had about 150 ml leftover that was needed to be removed. The average female bladder holds around 400 ml so mine is a wee bit off.

The Treatment plan is to eliminate first thing in morning, walk around 15-20 seconds, go potty again. Throughout the day try again to go potty, walk around 15-20 seconds, go potty again. Repeat before bed.

The other option is to go on the hour every 2 hours during day which may be a task for me since I still go every hour and sometimes twice an hour.

The plan we set was Biofeedback – Percutaneous tibial nerve stimulation (PTNS): a needle is inserted into the tibial nerve near my ankle that sends mild impulse electrode current to stimulate the sacral nerves in low back to help improve or restore bladder functions. He said once a week for 6 weeks but some sites said for 12 weeks. I mean whatever works that’s not a pill. The first visit will be in August.

If the biofeedback doesn’t work then possibly Botox into the bladder or medication. We always ask about natural therapies as I don’t want to be lugging around a pill box so hopefully this biofeedback option works.

The Annual Women’s Wellness exam that I dreaded to have…

First off, I go every year to get my exam. It’s always not an appointment to look forward to. I mean how fun is it to sit there half neeked getting poked and prodded in your lady bits and whoohaa. Especially since this was a new Certified Nurse Midwife I was meeting. My favorite Nurse Practitioner who I’ve seen for about 8 years decided to retire in Tennessee! I don’t blame her, Tennessee is beautiful and wanting to be closer to grand babies totally wins! πŸ‘ΆπŸ»

This appointment was frustrating to me, I got there early, checked in and gave them my sample. I waited a little while for the nurse to call me back to get all my vitals – BP 120/80! Woot, woot! I then waited almost 30 minutes sitting there undressed except my sock with the gown turned to be open towards the front and paper covering my whoohaa before she came in. I was there a full hour before I was even seen! πŸ™„

We chatted a bit, told her about my MS, that I wanted to get my vitamins, minerals and hormones checked. I also wanted to see if they were causing my menstrual migraines or if maybe a lower dosage for birth control pills would be recommended. We decided on just continuing on my regular pills but skipping my periods to see how I did. πŸ€”

Next was to check of my breathing, thyroid gland and then the breast exam was next.. She found a lump in my right breast close to the center of my chest. My heart sank a little.. She made me feel it and I said I don’t think I’ve felt that before. πŸ₯Ί

I was already due for a mammogram but now it’s supposed to be a diagnostic with ultrasound one that had already been set up for next month. She was explaining it could be the lymph node system as it does run near your breasts into your armpits. I feel kinda numb but hopefully it’s nothing. Please, please do your own exams often and get checked once a year to make sure you’re in good health. πŸ’–