Biofeedback update & Speciality pharmacy issues…

I completed my 6th biofeedback appointment and still am trying to determine if I see any changes in my bladder function. πŸ’¦

I actually have a running list of times I have gone potty the last two days. πŸ˜‚

It seems I still go every hour but I’ve gone 2 hours without having to go a few times! πŸ‘πŸΌ

I’m hoping to see some changes soon especially before our vacation planned next month. 🀞🏻

Now on to my issues with CVS.. This the the 3rd of 4th time I’ve had an issue with them getting my specialty medication to me. πŸ™„

I placed my order online LAST Friday to be shipped and here on Tuesday as I would be out of medication for my evening dose. I tracked it, it said scheduled for 9/10. Welp it was about 5:30pm and still no updates. It showed that the package was incorrectly sorted which may cause a delay and would not be here until 9/12. πŸ€” Uhm no, now I’m out of medication and had to call and speak with an escalations manager. This always frustrates me as they are so nice and all I wanna do is yell at the UPS person that they have on the line “do you not understand the urgency?!” as they are never helpful. 😀

The manager had to cancel the other order as the package was still in CA and sent out a new one. I just don’t understand why CVS does not send items through UPS overnight or why they do not just send Golden State Overnight like how my account is listed to do so since UPS has messed up in the past.

I’ve tracked the package and at least it’s in my state! 😊

I know it’s only a day without and my insurance pays for the entire amount minus my little Co-pay. What if it was a medication I needed to save my life? I can’t imagine how people would feel if they didn’t have their life saving medications. And how do people that can’t pay for their medication on occasion have to choose between groceries or medication do this daily? πŸ˜”

I am lucky to live where I do live and have the medical care that I do have. πŸ’–

MS journey continues – Urodynamics Study (UDS) test results.

Bladder is all normal and healthy in regards to age and anatomy.

During the filling of the bladder; I had spasms in my bladder, tricking my body into thinking I had to go hence the frequency.

I had a spasm at 120 ml another at 150 ml. Once the amount was at 225 ml, the urgency increased and I needed to really go potty.

After I emptied my bladder, I had about 150 ml leftover that was needed to be removed. The average female bladder holds around 400 ml so mine is a wee bit off.

The Treatment plan is to eliminate first thing in morning, walk around 15-20 seconds, go potty again. Throughout the day try again to go potty, walk around 15-20 seconds, go potty again. Repeat before bed.

The other option is to go on the hour every 2 hours during day which may be a task for me since I still go every hour and sometimes twice an hour.

The plan we set was Biofeedback – Percutaneous tibial nerve stimulation (PTNS): a needle is inserted into the tibial nerve near my ankle that sends mild impulse electrode current to stimulate the sacral nerves in low back to help improve or restore bladder functions. He said once a week for 6 weeks but some sites said for 12 weeks. I mean whatever works that’s not a pill. The first visit will be in August.

If the biofeedback doesn’t work then possibly Botox into the bladder or medication. We always ask about natural therapies as I don’t want to be lugging around a pill box so hopefully this biofeedback option works.